Showing posts with label autism. Show all posts
Showing posts with label autism. Show all posts

Monday, January 27, 2014

Thank You Tyler Gildin {Comedian Apologies for using "Autistic" as a Joke}

This morning, I quickly scrolled through my FB feed and saw a link to The Most Awkward Dance Moments of The 2014 Grammy Awards. I didn't watch the Grammy's so I was interested in seeing some of the write ups. And Tyler Gildin's article was pretty hilarious. 

Then I saw the caption: Autistic Bear Bounce. And I stopped laughing. 

Because the singer's (I'm old and have no idea who the woman is) dance movements looked like The Boy's stim - eyes half closed, arms moving up and down stiffly. And it pained me. The Boy cannot help his stim. He does it when he's excited or frustrated or scared. 

And lately, The Boy's been interested in dancing. He's always talking about having a "dance party." His dancing, is usually just jumping up and down or moving stiffly from side to side. Dancing doesn't come naturally to him. It's only in the last year that he's acquired the motor planning to dress himself. 

I took the joke of "Autistic Bear Bounce"personally. I couldn't just let it go. So I left a comment. And then I sent Tyler Gildin a tweet.

And you know what happened? He not only changed the caption but he apologized. 


Tyler Gildin could have been a jerk (ahem, DL Hughley). Gildin could have easily turned against me on Twitter and made me a target of his ridicule. And he didn't have to change his article. But he did. And I appreciate it. 

Someone replied to my comment, saying I should "chill out." But I just can't chill when it comes to autism or any other special need being the punchline to a joke. It's not okay to make fun of autism. Ever. I have written about use of the 'r-word' and I worry that autism will soon replace it as a derogatory term. I don't want to be the word police. But people must be held accountable. People need to understand why their words matter. I hope Gildin understands the power and impact of his words. And I hope that he'll think before using autism as the punchline.   

When I think of how hard The Boy has worked to do all the things that come so easily for other kids like point his finger, wave, jump or speak. I am so proud and I cherish every one of those milestones (they are often the things that keep me going). It’s incredibly painful when people use autism as a term of ridicule. 

The Boy is growing up. One day, he may like a girl or want to play basketball with the neighborhood kids or apply for a job. I don't want to think about him being left out or made fun of because he's different. All I want is for him to be given a chance and to be understood.

I'm just one mom. I can't change the world. But today, I changed one person's mind.  And it's a small victory.  

Sunday, January 19, 2014

AW Sunday Review | 7 Steps to Nighttime Dryness

Disclaimer: I was provided with a complimentary copy of  Seven Steps to Nighttime Dryness  and a Dry-Me Enuresis Alarm for review purposes.  The opinions expressed are my own and have not been influenced in any way.

The Boy will be eight years old tomorrow and he still wears a pull up at night. It took us a few years for him to be fully potty trained during the day. I've been holding off night time potty training.

When I was approached by Renee Mercer, MSN, CPNP, the author of Seven Steps to Nighttime Dryness to review a copy of her book and to try the Dry Me Enuresis Alarm - I immediately said yes.

I just finished reading through the book and I think I'm really ready to start. Commitment and consistency are critical during daytime potty training and even more so for nighttime.

What I like about the Seven Steps to Nighttime Dryness is that it helps explain bedwetting and possible factors (including constipation). The book also breaks down the different alarms so that you may pick the one that's best for your child. There's also a weekly progress chart to help keep track. 

While the "7 Steps" is written for "typical" kids, Mercer has a section that goes "Beyond Seven Steps" which addresses special cases including kids with special needs. Mercer assures that if a child has maintained dryness during the day that nighttime dryness is a strong possibility. She goes on to say that: If you have a child with special needs, it is important to understand your goal. And then proceeds to explain various options. 

My goal is to get The Boy to wake up to use the bathroom during the night. And the Seven Steps to Nighttime Dryness has given me the tools and motivation to start the process. 

In the next few weeks, I'll share how we're preparing and our progress with the Dry-Me alarm. 

If you're considering daytime potty training your child, check out my Parents posts: 




Disclaimer: I was provided with a complimentary copy of  7 Steps to Nighttime Dryness  and a Dry-Me Enuresis Alarm for review purposes.  The opinions expressed are my own and have not been influenced in any way.

Saturday, January 11, 2014

Thank You LATINA Magazine | 37 Latina Bloggers You Must Know in 2014


LATINA | February 2014 
Autismwonderland began as a grad school course assignment in September 2010. When I first started writing only my professor and a handful of friends were reading. I never imagined that an obligatory assignment, my labor of love would have such a powerful impact on my life.

When I first started blogging, I had no idea that there were so many amazing Latina bloggers. And little did I know that many of them would become close friends. Many of my blogging friendships began on line. And over the years, I've had the pleasure to meet them in real life.

Earlier this week, I squealed out loud when I saw this tweet:



To be recognized by Latina magazine as 1 of the 37 Latina bloggers to follow in 2014 is such an honor. And I am so especially proud to be among so many talented women…may women I am proud to call amigas.    


To meet the other fabulous Latina Bloggers visit: http://www.latina.com/bloggers

Friday, January 10, 2014

Max Loses His Only Friend | #Parenthood (Season 5, Episode 12) "Stay a Little Longer"

Parenthood: Season 5, Episode 12
Stay a Little Longer (Jan 9, 2014)

I've been watching Parenthood since it started. I don't know why I've never written about it before. I love the show. (It also sort of annoys me…but I don't want to get into that now.) The show tackles subjects that really hit close to home for me. Last night's episode - rather Max' story line - really moved me.

Recap:
Adam's confused when Micah ignores Max at school. Micah is still Max's best friend, right? Max says they aren't friends anymore, but refuses to elaborate. Kristina wants to call Micah's parents, but Adam is determined to solve the issue directly with Max. After much probing, Max tells Adam that Micah's obsessed with basketball, which is stupid since he's in a wheelchair and can't play. Wheelchair basketball isn't basketball. Maybe that's what offended Micah... Per Adam's suggestion, Max apologizes to Micah and invites him to a Golden State Warriors game complete with hot dogs and nachos. Too busy with his new friends, Micah says no. Adam's heart breaks; Max has lost his only friend. Kristina and Adam rally, revving Max up for an awesome basketball game with his parents.

What I love about Adam and Christina (Max' parents) is how differently they feel when it comes to Max. It's honest and relatable. Over the years, I've seen them grow as a couple and evolve as special needs parents. And yet there is still so much they have yet to learn. I think they believed that because Max and Michah both have disabilities (for lack of a better word) - it would be the ideal friendship. However, Micah's rejection of Max reveals that having a disability doesn't automatically mean you can tolerate or understand someone else's.  

Adam tells Christina, "Max has lost his only friend at school and kids at school are starting to notice his differences and he's all alone." 

It's an experience I can see our family having. Maybe that's why last night's episode hurt my heart so much.

The Boy doesn't go to school with typical kids but he is getting older. The Boy will turn eight years old in two weeks. And the older he gets the more obvious his differences become. The Boy does not have the same interests as a 'typical' 8 year old boy. There are times when I wonder if The Boy experiences loneliness. Even if he doesn't, whenever we're at the playground and The Boy is playing alone - I feel it for him.

Breaking up with a friend is painful. When I walked away from a 20 year friendship it was a difficult decision but I knew it had to be done. And while I missed my friend, I took comfort in the fact that I had other valuable friendships. I could not imagine losing my one and only friend.     

I know Max is only a character in a television show, but that rejection is real. It's something so many kids with autism face. And it's damaging. I never want The Boy to go through that. If I could shield him from those experiences forever, I would. But I can't. 


The Boy doesn't need to be the most popular kid at school. All I want is for The Boy to have one kid, at least one person who gets him.  

While Max has lost his only friend at school, I'm grateful that he has Hank. Because Hank is someone who gets Max.


And I hope there's someone like Hank in The Boy's life.

And if you have no idea what I'm talking about...check out this clip from last week's Parenthood episode, "Promises." (I was a hot sloppy sobbing mess watching this.)

Tuesday, December 31, 2013

My Best Moments of 2013 on Instagram | #photostatigram #memostatigram


It's the last day of 2013! I have loved seeing everyone's #Memostatigrams but for some reason, I can't share mine. I think it's because I have an iPhone 4. Who knows? I'm not tech savvy. But I am able to share a photo of my best Instagram photos in other ways...


60: The day I handed in my thesis. Read about it here - So Now What and 10 Things I'm Going To Do Now That I'm Done with Graduate School

58: The morning I graduated. Read about it here - Graduation

52: The day we ran for Autism Speaks; my very first 5K. Read about here - 4 Miles of Hope

47: My beautiful custom made Autism Awareness Toms by Pear Mama

47: The Boy…simply being The Boy. Happy.

2013 has been good to me. But I know... 



And of course, after I hit publish on this I figured out how to upload my video to You Tube.





Sunday, December 29, 2013

A Winter Walk on Orchard Beach | Sundays in My City {photos}


Earlier this month, we took a long winter walk along Orchard Beach (in The Bronx) and I wrote about the poignant moments between fathers and sons I witnessed that weekendToday I wanted to share some of the photos I took during our walk. 

From a distance, we saw a boat washed ashore from the storm. It was pretty crazy seeing a boat on the beach.   




What would a walk on the Beach be without looking for seashells? 


And of course, we have to hit the playground. On a cold winter day, it's a nice treat to have the playground to ourself.




Unknown Mami

Saturday, December 28, 2013

No More #FatTalk and Other Things I'm Leaving Behind in 2013

In a few more days 2013 will be over. I am one of those sappy sentimental New Year's fools. If I manage to stay up (which, let's be for real, the older I get the harder it is) I will probably cry reflecting on all the ups and downs of my year. And after I ugly cry, I'll feel grateful to have a clean slate. 

I'll wake up on New Year's Day ready to make grand changes to my lifestyle. I'll eat a little healthier, exercise and put myself to sleep earlier. And then a few days later, I'll be back to my previous year self. I may have great ideas but I have a hard time with follow through.

But I am getting older and I'm old enough to know better. I need to make significant changes to my life. And there are a few things of 2013 that need to be left behind. A new year is a fresh start - it's a reboot button. 

4 Things I'm Leaving Behind in 2013

No More Fat Talk. This on the top of my list. I am notorious for talking about how fat I am. And I use (and think) the words "fat" and "disgusting" about myself way too much.  I've been struggling with my weight for last eight years. I go through spurts of losing 5 pounds and gaining 10. I've put on 20 pounds in the last two years. I stepped on the scale this week and hit 170 pounds. (I'm 5'6.) I used to be a gal who loved to shop and now with every few pounds I gain I find myself dreading stepping into a fitting room. It doesn't feel good having to keep buying bigger sizes but the way I feel about myself when I look in the mirror is so much worse.  

Stop Thinking of Myself as a Student. After five long, stressful years of graduate school, I graduated in June. It took me nearly 15 years to finish my bachelor's degree. I've been a college student for 20 years - all while working full-time. 2014 is my first college-free year. I've had a 'student' mentality for so long. There is a part of me that sees myself as someone just starting out. But I've accomplished a lot, especially over the last 5 years - and I have to own it. I need to stop seeing myself as a creative writing student and start seeing myself as a professional writer.

Babble. I spent 2013 being a Babble Kid Contributor. I loved every second of it. But I've been doing so much, for so long I'm exhausted. And I need a break from it all. I work a lot. I I work all day in an office, then I come and work most nights. More and more, The Boy is starting to notice how much time I spend on my laptop. He'll say "Close the computer and come play with me." And more often than not, I have to say no because I have to work. 

It's ironic that I waited so long to hear those words from him, now that he has them - I am too busy writing to meet his needs. I decided that I needed to scale back on my freelance writing assignments. The Boy needs me more. And I need him just as much. 

I published my last Babble post (a round up of my favorite 8 blog posts) and I'm going to spend the first few weeks of 2014, relaxing and not doing a darn thing except spend time with my family.

Wasting Money/Throwing Away Food. We spend a lot of money on food: at the supermarket, dining out and ordering greasy take-out. It's embarrassing how much time and money I spend at the supermarket buying food, only to throw it away because it's gone bad. It's such a waste of money. I am hoping that with a lighter workload, I can get back to cooking real meals for my family. 

My goals for 2014 are simple: feel better about myself, live a healthier life and have more quality time with my family. I think these are worth the follow through. 


Friday, December 27, 2013

A Saturday Morning at the Legoland Discovery Center

Disclaimer: I was provided with complimentary tickets to the Legoland Discovery Center. No compensation was received, all opinions are my own. 



We're regular shoppers at the Ridgehill Mall in Westchester. And The Boy loves eating at Bonefish and Yardhouse. And of course, we frequent the Lego Store but we never had the chance to check out the Legoland Discovery Center until a few weeks ago. 

The Boy was super excited when we told him we were finally going! We heard that it gets really crowded by mid afternoon and from experience we know that these kind of activities are best for The Boy when we go early in the morning. So we arrived shortly after they opened. There was a little bit of a line but it was manageable.

What I especially loved was that it wasn't too big and it wasn't too small. It was a good size without being too overwhelming for The Boy. While I was in awe of MINILAND (New York’s skyline come to miniature life made from nearly 1.5 million LEGO bricks, with moving airships and trains), The Boy's favorite was the LEGO Fire Academy (a giant colorful jungle gym, with a climbing wall and slide). The LEGO Fire Academy is ideal for sensory seeking kids like mine! The Husband enjoyed the LEGO Racers: Build & Test - he had more fun building his race car than The Boy - it was cute. The Boy liked building his car too and it's perfect for fine motor skills.     

But we all loved the LEGO 4D Cinema! I was a little nervous about how The Boy would do. We've tried 4D movies in the past and it hasn't gone so well. But since The Boy's doing better watching 3D movies, we figured he could sit through a 12 minute 4D movie. The Boy really loved the movie - he laughed, kept trying to reach out to grab the images coming at us and he loved the bubbles.

We spent about 2 hours at the Legoland Discovery Center and by the time we were ready to leave, it was starting to get crowded. Going at 1o am on a Saturday morning was perfect for us and we'd definitely go back again. I think it's a  great family fun option especially during the cold winter months.       



  • Take part in children’s activities with the Master Model Builder.
  • See MINILAND, New York’s top attractions made from LEGO.
  • Soft play area, rides, 4D cinema and more!
What You Need to Know Before You Go

Attraction Hours of Operation:
  • Sunday - Thursday: 10am – 7pm (last ticket sold at 5pm)
  • Friday - Saturday: 10am – 9pm (last ticket sold at 7pm)
Ticket Prices:
Adult (13+)   $22.00
Child (3-12)  $18.00
Child (0-2)    free
Tickets may be purchased on site and on line. Includes admission to LEGOLAND® Discovery Center and unlimited access to all of the attractions. Once inside, you may stay as long as you wish, subject to opening times.

GPS address
1 Ridge Hill Boulevard, Yonkers, NY 10710

Map & Overview of Legoland Discovery Center

Disclaimer: I was provided with complimentary tickets for myself and my family. No compensation was received, all opinions are my own. 

Friday, December 20, 2013

Life Lessons, Christmas Miracles & Gift Giving Fails | #FridayFragments

It's been way too long since I've linked up with Mrs. 4444's Friday Fragments but I want to get back in the swing of (blog) things so here we go...



Earlier this week I took The Boy to a holiday party at work. We had our challenges but The Boy was being very chatty. After I left, a coworker (who met The Boy for the first time) told another coworker (a woman who's known The Boy since he was an infant) "I thought her son has autism."

The coworker believed that all children with autism are non-verbal. My other coworker (a woman who has no children or any experience with kids with autism, other than The Boy) explained The Boy's autism and how far he has come.

***
December 2010
This year The Boy is especially excited about Christmas and it's one of those little things most parents take for granted. Seeing and hearing his excitement makes me think back to the holiday season of 2010 when he was just starting to get it. I wrote a post, The Moment I Forgot About Autism, (it's one of my favorite essays I've written about our autism journey and I think one of my best). It's about one our very first back and forth conversations. And what made it extra special was that it was about Christmas. I hope you take the time to read about our holiday 'miracle' moment. 


***


Every year I worry about what to get my parents for Christmas. They're tough to shop for. They don't want anything, they don't need anything. They are very simple people. I had this idea to buy them tickets to a concert - a Parranda (my friend Melanie of Modern Mami explains it really well and shares a yummy recipe!). The concert highlighted 3 well known old-school Puerto Rican folk singers. I just knew my parents would love it! 

Except…I forgot to tell them. I forgot the tickets were for last Saturday (12/15). And last Saturday, there was a major snowstorm here in New York. Fortunately my friend called me around 4pm to remind me about the concert. Unfortunately by the time I got in touch with my parents - it was too late for them to travel. And I didn't want them to travel during such crappy weather.

I went to the concert and had a good time. It was probably one of the best gifts I've ever gotten my parents (aside from photos of their only grandson) too bad they couldn't enjoy it.

***


Do you use Elf on the Shelf with your kids? I do and it works so well for The Boy! However, this week has been pretty hectic so I forgot to move for a few days and our mornings have been rushed because they changed the bus pick up time so we haven't been playing. Tuesday morning, The Boy asks "Hey momma where's Elfie?" He starts giggling as he sees me looking around for Elfie - since he's not where I last saw him. The Boy took it upon himself to move the Elf to another shelf. 



Half-Past Kissin' Time

Sunday, December 15, 2013

AW Sunday Review | Fun and Function Space Explorer Suit for Sensory Activities

Disclaimer: I was provided with a space explorer suit for review purposes. All opinions are my own.


Fun and Function is one of my favorite websites to shop for therapeutic toys and items for The Boy. Over the years we've purchased quite a few items. The items on Fun and Function are affordable and high quality. When asked if I wanted to review a product from Fun and Function, I knew I wanted something to address The Boy's sensory needs. The Boy is a sensory seeking kid who loves deep pressure. 

The Space Explorers Suit is great for sensory integration. As soon as I opened the box and pulled out the Space Explorer Suit, The Boy jumped right in and started rolling around. 
The Space Explorer provides calming deep pressure, heavy work and proprioceptive input for tactile defensive children, sensory seekers and crashers, including children and tweens with autism. This fun suit helps children develop spatial and body awareness, muscle strength, motor planning and creativity.
The Space Explorer Suit is something that Norrin can get in and out of easily. Sometimes he buries himself inside, other times he just likes to be in it while reading or hanging out in his room. When The Boy's hiding, I pretend that I can't find him - he thinks it's hysterical! I can tell that being inside calms him. The Space Explorer Suit can be used for pretend play, sensory integration and heavy work. And what's great about the Space Explorer Suit is that I don't have to worry about it getting dirty because it's machine washable. I think the Space Explorer Suit is great for home and would work well in a sensory gym with an occupational therapist.   


Disclaimer: I was provided with a space explorer suit for review purposes. All opinions are my own.

Monday, December 2, 2013

Fathers and Sons at the Playground

The summer came and went without a visit to the beach. Without walking along the sand or dipping our feet in the water. 

Over the weekend, we decided to drive to the beach. It's off season and the parking is free and we knew the playground would be empty. 

The Boy loves the beach. We walked up and down the beach holding hands - more out of need than out of want. The Boy wanted to run, take off his shoes, throw himself in the sand and roll around. But it's winter in New York City. And it was a cold November day.

Norrin and Joseph | Orchard Beach | 11/30/13

After walking along the beach, we headed back to the playground. We were right, it was empty. The Husband and I sat on a bench and relaxed while The Boy ran around. Though The Husband and I sat on benches at opposite ends. This playground is large and there are exits on three sides. The Boy was happy, running freely, flapping his hands. It's nice having the playground to ourselves, a little luxury.

And then they came in. A father with his teenage son. I heard him before I saw them. His voice in the midst of changing from boy to man. His voice sounded familiar, though I couldn't understand anything he said. When I turned to look, I saw them on the swings. The father was swinging, gently urging his son to do the same, "Kick your legs…kick your legs like me." The son's arms looped around the swing chains and was moving gently back and forth, "talking" loudly. Nothing he said made sense but I didn't want to assume the son was non-verbal (because I'm sure when The Boy makes his strange loud noises, people assume he can't speak).  

In that moment, I felt such a strong connection to the father. We were all at the playground, at the beach on cold Saturday afternoon because we knew it would be empty, "safe" for our kids. I imagined the father's worries, his joys. I smiled at the father, though I don't think he noticed - his gaze was focused on his teenage son and trying to teach him how to swing.  

I turned my attention to my son. He was standing at the platform in front of a "fireman pole." I could tell he was hesitant. He's fearless in many ways and in other ways, overly cautious. 

"You can do it boy. Just slide down." The Husband said. "I'm here Norrin. I will help you. Slide down."

Norrin slid down and I clapped before his feet touched the ground. I ran over and told him he did a great job. I smiled at The Husband, "That's his first time doing that."

"How do you feel?" The Boy asked.


"I feel proud." I said. 

The Boy was cold and requested hot chocolate. We left the playground, leaving the father and his teenage son to have the space for themselves. It was their turn.


***

Later I asked The Husband about the father and son. "Did you notice them?" I asked. "He reminded me a little of Norrin."

"Yeah," The Husband shrugged and said nothing else.

We don't talk much about autism. We don't talk about what The Boy's future will be like. We don't talk about our worries or fears much. Maybe it's because we'd rather focus on the present. Or maybe it's because it hurts.    

Whenever we see an older boy with autism - it's like looking through a crystal ball. It forces us into the future we are not quite ready for. Sometimes it's easier to look away and say nothing.


***

The next day I took The Boy to the playground by our apartment. Once again we had the park to ourselves. I sat on a bench and let The Boy run free.

After a few minutes another father and son came in. The son was much younger (probably between 4 - 5 years old) and smaller than The Boy. And I was happily surprised when The Boy said, "Hi! Do you want to play with me?" and the young boy obliged. I watched them chase each other around. 

When The Boy tired of tag, he walked over to the swings and the little boy followed him. The Boy is getting so good at swinging on his own. I thought back to the days when he refused to even sit on the swing and marveled at how far he's come.

The little boy yelled out to his father for help. The father - who was sitting at the other end of the park, reading the paper - didn't get up and just yelled at him to "kick his legs." The little boy tried, wriggling his legs but nothing happened. After yelling for help a second time, the father walked over. 

I watched as the father gently pushed his son, instructing him to kick. And I thought about the father with his teenage son from the day before. I thought of The Husband and The Boy. Different fathers, different sons, different parks, different circumstances - same thing. Just three fathers helping their sons. Doing what good fathers are supposed to do.

Neither The Husband nor I know what the future holds for our son. But I know that no matter what happens, The Boy will always have his father to help him along the way.

     

Friday, November 22, 2013

Coping With Working Mom Guilt When Your Kid Has Autism

When The Boy was first diagnosed with autism there was no discussion on whether or not I would continue working. I knew that I didn't have any other choice. We just couldn't afford for me to be a stay-at-home mom.

And aside from needing to work, I wanted to work.

Whether you're a mom who works or stays home - guilt is inevitable. And when your kid has special needs, it adds a whole other layer of guilt. (Yeah, it's super fun!)

Lately my guilt has been in overdrive. This last year, in addition to working full-time (I'm an administrative assistant to three attorneys.), I've been doing a lot of freelance work. (My day job schedule varies but I work a 35 hour week. And it's an hour commute each way.)
side note: My day job isn't my dream job but it pays the mortgage on our little condo apartment and provides kick-ass health insurance. I need my day job.
When I come home from work, there's dinner, laundry and cleaning, before bath time and bed time stories. 

Somewhere between all of that (and well after), I write for Babble and Parents.com. And every so often, I agree to write for other venues. It seems as if I'm writing more and more. Which yeah, it's great. I LOVE writing. I'm grateful. It's extra money. The extra money helps with therapy costs. It allows for the little extras in life - a new DVD, a meal at a favorite restaurant or a new toy for no reason. It also provides opportunity.  

Last month I attended a blog conference in Atlanta. And last week I flew to Disneyland. Both trips required me to travel alone. Without my family.

I'm not the kind of blogger that travels often (usually once a year). But when I do leave, it's tough on The Boy. He cries every night I'm gone. Though we try to explain to him, he doesn't understand why I'm not home. It throws him completely off schedule. And The Husband is left on his own to deal with meltdowns, bath time and the morning routine. I know he's a parent too but I feel like it's my job to take care of them both. And when I'm not there, I'm failing as a parent and as a wife.

And even when I am home, I'm still not always "there." I spend most of my weekends, sitting on the sofa typing away and most evenings, I'm working. The Boy often comes over and says, "Momma close the computer and come to my room." Sometimes, I close the computer and sometimes I just can't. And when I can't, it hurts because I waited so long to hear those words. It hurts because there are times when he wants to be alone in his room and asks me to leave. 

Lately I've been wondering if the little extras are worth the time away from my family. I've been juggling so much, for so long and I'm exhausted. I thought that once I graduated, things would be easier. Nope - I've gotten busier. And while I'm grateful for the work and recognition, what I really want to do is slow down.

Will slowing down eliminate all my guilty? Probably not. But I'm hoping that doing less for everyone else will allow me the time to do more with my family. 


Catch up with my Babble posts

Wednesday, November 20, 2013

This is Autism


I don’t understand autism,” a friend said while we were eating dinner. We’ve know each other since grade school and hadn’t seen each other in a while. We were catching up and asking about our families. Though we are close enough to ask each other almost anything, I could tell she was uncomfortable admitting she didn’t know much about autism. I couldn’t blame her. I didn’t understand autism either, until I had to.
Autism isn’t something that can be easily summed up in a sentence. Or a blog post for that matter. And I was at a loss at how to explain it to her so that she could understand. I told her about Norrin and the progress he’s made. We talked a little about the future. And then like long time friends who hadn’t seen each other for a while, we immediately moved on to another subject.

But I’ve been thinking about our conversation since. I thought about the This is Autism Flash Blog in response to Suzanne Wright’s Call For Action. Wright believes that parents raising kids with autism are “not living,” they merely exist. And that we live in despair.

Read my post on Parents.com/To The Max - This is My Son. This is Autism - HERE.

Sunday, October 20, 2013

AW Sunday Review | Body Talk: Teaching Students with Disabilities about Body Language

Disclaimer: Woodbine House provided me with a complimentary copy of  Body Talk: Teaching Students with Disabilities and Body Language  for review purposes.  The opinions expressed are my own and have not been influenced in any way.



Ever since The Boy was diagnosed with autism, doctors and therapists have told me that The Boy has no sense of personal space. (Neither do most of the folks on the New York subway, but that’s for a different blog…)

As The Boy gets older, personal space has become more of an issue. People are more likely to laugh off a two or three-year-old touching their face. A big seven-year-old touching an adults face? Probably not. The older The Boy gets, the more worried I become. Living in a city like New York, getting in someone’s personal space is the kind of the thing that could lead to serious trouble.

Working on personal space has become a goal at school and at home.

I was really excited about reviewing Body Talk: Teaching Students with Disabilities about Body Language by Pat Chrissey. It’s the kind of book that I know I will return to again and again.
Children and teens with autism and other developmental disabilities can be taught the language of nonverbal communication with the practical strategies developed by veteran special education teacher Pat Crissey. More than 100 activities break down elements of body language into teachable components.
What I appreciate about Body Talk is that it really goes step by step and breaks down all forms of body language: emotions, facial expressions, posture, body orientation and eye gaze, personal space and touching and gestures.

However Body Talk just doesn’t tell you what to do – it shows you. The activities and games are great ways to make learning fun. It’s simple enough to be done at home one on one or in a group setting at school. What’s especially helpful about this book is that it comes with a CD so you can easily print out all the activities. I printed out the personal space activities for The Boy's teacher. 

The activities vary in age and functioning levels and you can easily modify activities to suit your needs. Body Talk is a must have book if you have a child with autism. And it's a book that will grow with your child from the early childhood years to young adult.

Body Talk: Teaching Students with Disabilities about Body Language is available on Woodbine House for $23.99.


Disclaimer: Woodbine House provided me with a complimentary copy of  Body Talk: Teaching Students with Disabilities and Body Language  for review purposes.  The opinions expressed are my own and have not been influenced in any way.