Showing posts with label norrin. Show all posts
Showing posts with label norrin. Show all posts

Tuesday, November 22, 2011

The Moment I Forgot About Autism

It happened in Target of all places, on a Sunday afternoon.  The husband had wandered off while I pushed The Boy around in the cart; though at four years old, The Boy was well over the weight limit.  It was easier to shop, if he was contained. 
Through the corner of my eye, I saw a woman. Unlike my frantic sloppy ponytail and my smear of cherry chapstick, the woman had time to fix herself before facing the world.  Her hair was neatly combed back in a ponytail; she wore bright coral lipstick, boot cut jeans and brown boots with kitten heels. Her nails were filed square and painted ivory. My nails were bare and bitten down.
I realized she was a mother.  She had one manicured hand on the handle of the shopping cart.  Her son lagged behind.  Every so often, her son wandered off.  When the mother called out a name, her son instantly reappeared.  Her boy was probably a year older than mine. 
I could never shop like that.  High heels were impractical when out with The Boy.  I never knew when I needed to run.  And there was no letting go of his hand.  If I let go, he’d wander away; the warmth of my hand would go unnoticed.  If I called out his name, he would ignore me, stuck in stim.  If he ran off, The Boy would never tell a stranger his name.  Not because he didn’t know it or couldn’t say it, the question just needed to be asked several times before The Boy provided a response; if he provided a response.  And it was unlikely that The Boy would look a stranger in the eye.  A stranger would give up.  And The Boy lacked the cognitive ability to say that he needed me or missed me.  The Boy was a kidnapper’s dream. No, I could never let go.
I wondered what that mother’s life was like; I wondered about the dynamic of her relationship with her son.  I was certain that she never had a team of therapists in and out of her house.  When she asked her child a question, he looked her in the eye and answered back.  And when she kissed that child goodnight, he would automatically say the three words every mother longs to hear, without any prompting and with genuine feeling.  When she let go of his hand, she knew he would return. 
Her boy wanted to start writing his Christmas list.  He wanted a new scooter and some video games.  The mother smiled and she said something that I did not hear.  I stopped listening.  It was hard to listen to their exchange and not feel envious.
We approached the baby section and The Boy attempted to stand, reaching out for the infant toys, his hands flapped with both excitement and frustration, bird-like sounds coming from his mouth.  Sit down. Use your words.”  I said in a firm tone of voice used by therapists. 
The Boy had words, lots of words actually – hundreds, maybe thousands.  But he used them sparingly and hardly spontaneously.  Most of his speech was scripted, memorized from books or cartoons. 
Mommy.  I want the toys please,” he asked. 
The Boy’s words were stilted, his high-pitched voice void of emotion.  With each syllable his head bobbed like a marionette. 
Fix it.”  I said. 
The Boy repeated the request in his natural voice.  Though his tone was deeper, it still lacked affect.  Words can be taught, emotional tone is much harder. 
We moved slowly through the aisles.  The store was crowed with holiday shoppers; the toy shelves were filled to capacity, not an item of out of stock.  Women walked with circulars in their hands, looking for sales; searching for price check machines. 
The glitter and sparkle of the Christmas decorations reminded me that I needed to buy a tree and pull the decorations from storage.  
Oh my!  Look at all these decorations,” The Boy said in his high-pitched voice.  His words were crisp and clear.  His facial expression was appropriate: happy and wide-eyed.  He pointed.  And I was surprised that he knew the word “decorations.” 
I pushed the cart closer to the decorations.  There were Christmas trees and wreaths, stockings and snowmen, candy canes and bright bulbs.  I didn’t care if he flapped; he was excited. 
What are the decorations for?” I asked.
The Boy looked me right in the eye. “For Christmas! C is for Christmas.”
The Boy kicked his legs against the cart.  He smiled the smile that I loved; it belonged to a four year old boy who was neither typical nor atypical; with dimples in each cheek, his eyes squinted and his nose scrunched up. 
I laughed.  That’s right!  Who comes on Christmas?”
Santa Claus!”
And what does Santa Claus bring?”
Presents!”
I praised The Boy again and again.  Gave him a hug and kissed his cheeks.  I must have looked like an idiot, making such a big deal over such a little thing. 
It was the first real conversation we ever had.  In that moment I forgot The Boy had autism.  I forgot about the mother in her kitten heels and her son with his Christmas list and my seconds of envy.  I forgot that a doctor once said, The Boy might never utter a word.  I forgot about all the hours of speech therapy that were needed to get to that simple conversation. 
I was just a mother and he was just a little boy, excited about Christmas.  And maybe letting go of his hand was not so far away.
~~~~~~~~~
This essay was written November 2010 but was never posted.

Wednesday, October 26, 2011

Tuesday, October 25, 2011

The Witching Hour

The Boy wakes at 3 am for the second day in the row.  And when he wakes in the middle of the night, it's often after midnight, usually between 3 - 4 am. The Boy wakes with giddy excitement.  Ready to play.  Turning on lights.  Pulling out books to read.  Singing songs.  Dumping his legos or magnet letters out of their bins, clattering on the hard wood floor.  He is talking, giggling, making eye contact.  He uses 6 - 8 word phrases, pronoucing every word clearly.  He, in fact, does so well that I often want to praise him for "good talking."  I do not.  

And on these nights that he wakes, I am up.  Sometimes letting him play, laying in his bed or in mine with one eye open.  Mindful that at any moment, he could run into the kitchen or open the front door. And other times coaxing him back to his bed.   

Is it the change of routine that sets this off?  Is it the quiet of the night? I have no idea. 

What are your kids up to in the Witching Hour? 

Monday, October 3, 2011

An Unlikely Nemisis


It all began three years ago, around this time of year.  The Boy and I were home watching cartoons, when these little guys - Moose A. Moose and Zee - came on singing, "I don't like candy corn." 

AND THE BOY FREAKED OUT!  I mean crying, running to his room, screaming NO NO NO - freaking out.

Huh?  What I miss?

The Boy used to LOVE them!  Especially Zee.  Before the diagnosis, I used to think The Boy was flapping because he was imitating Zee.  (I know, I was completely clueless.)

And while candy corn is my least favorite candy in the whole wide world, I kind of like Moose A. Moose and Zee.  Not only are they totally adorable.  But I'll admit, their lyrics are catchy. 

We haven't watching Noggin since.  If it's on at a friends house, we either have to leave or they need to change the channel.  I mean, I really don't get it; he loves everything else on the channel: Dora, Diego, The Wonder Pets, Backyardigans...but once he sees that yellow moose - it's over.

(Staying at the Nickelodeon Hotel back in June was quite interesting.  On the 2nd day, Moose A Moose and Zee were playing on the lobby televisions and we had to run out.  For the remainder of the week, when walking through the lobby, me or The Husband had to walk up ahead - to make sure the coast was clear.) 


Look at how cute they are! 
I just don't get it. 
As another Halloween approaches, I'd like to sing this song with him.  I'd like to be able for The Boy not to live in fear of this moose and his side kick.

Are your kids afraid of something that makes no sense to you?   How do you help them get over their fear?

Friday, August 12, 2011

The Final Day


Today is the last day of school.  And unlike the other last days at the end of the year – this is his final day of being a preschooler.  He will be moving to kindergarten, to a new school, where he will no longer have the “Preschooler with a disability” classification.  He’ll be classified with “Autism.”


I look at The Boy’s book-bag, worn from wear and I remember the first time I put it on him three years ago.  It was too big and wouldn’t stay on his shoulders, but I put it on because I wanted to take a picture.   And now today – three years later, it still falls slightly off his shoulders except now he knows to adjust the straps with his hands.  It makes him look like one of the big kids.  And I so desperately want to keep him a baby.

Earlier this week I picked The Boy up from school.  And as I walked up the steps I realized it would be last time I’d pick him up from this school.  The school he’s been in since his diagnosis.  It was hard not to feel emotional, hard not to cry as I hugged the Early Intervention Director goodbye.

This transition won't be like transitioning from EI to CPSE.  The Boy won’t be moving up to a different floor; he’ll be moving to a new school where his name and face are not yet known.

First Day Sept 2008
I thought about the first time I put him on the bus.  How nervous I was.  He was barely 3 years old, still in diapers.  Putting him on a moving vehicle, with a driver I didn't know.  Handing him over to strangers when he had no words or way of communicating.  And all I could do was watch and wave from the sidewalk, hoping everything would be okay.

Last Day Aug 2011
And when I put The Boy on the bus this morning, I hugged and thanked the bus driver and matron.  Because they were really great with The Boy, saying good morning with a smile.  Waiting for me on mornings when I was late.

I walked to the corner, bought myself a cup of coffee, waited for The Husband to pick me up.  And as soon as I stepped in the car, I buried my head in my hands and cried.  It is really over, I thought.

I knew this day would come.  I’ve been dreading it since last September.  And I feel like I’ve been pushed backwards, further down the rabbit hole.  And I have no idea what to expect.  


"End? No, the journey doesn't end here. [Kindergarten]* is just another path, one that we all must take." Gandalf, Lord of the Rings


*obviously this quote has been modified.

Wednesday, July 13, 2011

The Literal Thinker

I know that individuals with autism are literal thinkers, I honestly haven't given it much thought when it comes to The Boy.  Over the weekend, I caught the first glimpse on how he interprets language. 

Since The Boy is doing so well with the iPad, we figured it's a good time to start introducing Wii games.  We asked our friends from across the hall to lend us Babysitting Mama.  Since we've been trying to have a baby, I figured this game would be helpful. 


We put the game on and the menu screen came on.  The Boy read 'Babysitting Mama.'  He started to smiled.  "Press play!  Press Play!" He was excited!  
 The Boy pushed me down on the sofa and placed the baby in my lap.  I was confused.  And then it hit me! 


Baby sitting [on] mama.  Duh...

Monday, July 11, 2011

Read To Me



We make it a point to read to The Boy every single day, usually 2 books a night.  It's our quiet time together.  We let the boy choose a book, then we choose one.  (This is how we introduce new books.)


Nothing makes me happier than to hear The Boy asking us to read to him.  I will drop everything, when he says those three words.

According to "The More You Know" website, only 46% of parents read to their children everyday.  Reading is one of the greatest gifts we can give our kids.  It's not about having the time, it's about making the time.  All you need is 15 - 30 minutes a day.   


So in no particular order, here are some of our  
Favorite Bedtime/Anytime Books

Brown Bear, Brown Bear What Do You See? We started reading these books to The Boy when he first started Early Intervention.  Our ABA 'homework' was to read this book 3 times a day.  I read it to The Boy in the morning, before I went to work.  In the afternoon, after the therapist left.  And again, right before bed.  Once he started to point, I asked him to point to the pictures.  Once he started to talk, I let him finish the sentences.      


Dr. Seuss There are just too many titles to choose from.  The first Dr. Seuss book we started reading was Mr. Brown Can Moo.  Again, another suggestion from our ABA therapist.  I can't tell you how often we've read this book.  But we also enjoy, Green Eggs and HamThe Cat in the Hat, Hooper Humperdink Not Him, One Fish Two Fish, Hop on Pop, How the Grinch Stole Christmas.  And my personal favorite:  Oh!  The Places You'll Go! You can never go wrong with Dr. Seuss!


Mercer Mayer Little Critter series.  I can't remember the first book we bought.  But we have a lot of them.  The Boy especially loves to read Just Me & My Mom, Just Me & My Dad, I Was So Mad, All By Myself and Just Go To Bed.  This series has done a lot for the boys social interaction, independence with self help skills and imaginative play.  He scripts from all of these books - but he uses the language appropriately.  He has a desire to communicate, I believe these books help.        
   
We also enjoying reading - There a Nightmare in My Closet

Over the Rainbow This book comes with a CD.  The Boy started reading it in school.  And he'd come home singing it.  So I had to buy it for him.  Now we sit and read it together while singing along with the CD.


Frog & Toad The Husband gets all the credit for this one.  I try to read these books to The Boy, but he always pushes me away and says, "Daddy to read."    


Goodnight Moon  A CLASSIC! 


Harold & The Purple Crayon What's not to love about Harold?! 


Where the Wild Things Are Another book I enjoyed reading as a kid.  The Boy really loves this book.  He reminds me so much of Max.  I purchased the stuffed animals.  And do he takes them, puts Max into a toy boat and he acts out the story.  I love it! 


The Napping House This is a nice book to read, especially at bedtime.  It has such a calm rythmic flow.  The Boy loves it!  And the CD - is just as soothing. 

Mouse Cookies & More I think all kids love Laura Numeroff books.  The Boy loves them!  We read them over and over and over and over and over again.  I feel it's also helped him with sequencing and cause and effect.  This book comes with a CD and also includes recipes for cookies, muffins and pancakes.

I Love You Through & Through  I started reading this book when The Boy was a baby.  Before EI, before the diagnosis.  And it's still one of my favorite books to read with him.  I want him to know how much I love him.  And this book explains it pretty well.     

Chica Chica Boom Boom The Boy loves letters.  So it's a no brainer as to why he loves this book.  We've bought it 6 times because he keeps tearing the books.  We also have the tree so we do it together to make it interactive. 

Go Away, Big Green Monster! The Boy's Early Intervention speech therapist introduced us to this book.  There's also a puppet that goes with it.  We bought that separately from Lakeshore

Dinosaurs Love Underpants  The Boy is going through a dinosaur phase.  He was introduced to this book in school.  And so, whenever he likes a book, I buy it.  (We're on our 3rd copy)  It's a silly book to read.  And I love hearing The Boy read the names of the dinosaurs. 

Biscuit  Although The Boy does not like dogs, he sure loves Biscuit books.  The Boy is starting to become interested in reading.  So we've been slowly introducing "My First I Can Read" books to his library. 

TV.  If kids are entertained by two letters, imagine the fun they'll have with twenty-six.  Open your child's imagination.  Open a book. 
~ Author Unknown

Monday, January 17, 2011

"I'm Mad at the Dirt"




"...your room looks like some two-dollar-a-week furnished room in some two-bit back street town in Oklahoma. Get up. Get up. Clean up this mess." 
~ Mommie Dearest


I grew up in the kind of home where you could eat off the floor any day of the week.  My mother worked hard to keep not only a neat home, but an immaculately clean home.  No prints in the mirrors, wood furniture polished with Pledge, our rugs always streaked with fresh vacuum lines.  And dinner always made by 6:30. She cleaned as she cooked -never burning a meal- and she never went to sleep with dishes in the sink.  I don't think I can remember a day when she didn't clean.    


So I know that when she comes over every day to take care of The Boy, it drives her nuts  looking around my apartment. But let's get this clear, I'm not dirty.  Not gross, roach infested or anything like that. I'm messy and yes, there are times when the dust is so thick I could autograph my furniture.  I only clean what needs to be cleaned: the kitchen & the bathroom.  (And Norrin's room - his room is the best room in the joint.)  Our clothes are always clean, though not always folded in there drawers.  And the garbage always thrown out.


But dusting, mopping? I can't keep up. I have three to four pairs of shoes out at at time (those are just my shoes).  Piles of books laying around. Magazines - don't throw those away, I'm going to read them!  And toys, toys, toys - in every single room. There just aren't enough hours in the day.  And after I come home after a long day of  work or school or The Boy's sensory gym - do I want to pick up a broom & mop? Not really.  So I stick to the basics. 


And the weekend's go so quickly.  There's laundry and food shopping and cooking.  Or an appointment, an errand or a play date.  Or I'm just so damn tired from working all week - do I want to clean?  Do I have to?     


So this morning I forced myself to clean - dusted actually.  Because staring at the thickness of it while on the computer makes me feel guilty.  When I am in the moment, I clean with such vengeance Mommie Dearest would be proud.  Scrubbing, scouring on my hands and knees, working up a sweat.  My hands in scalding water, wringing out rags. Really cleaning, moving things out the way - not cleaning around the dirt and dust. And I feel like a better mom because of it. Dusting makes me feel like I've truly have everything under control. When finished, I sat back, admiring the shine of my furniture and stereo equipment, the gleam of my floor.  Everything in its place. 
And then I heard the crash in The Boy's room.  His high-pitched giggle.  Barefoot, I stepped on a miniature army man walking to his room.  His bin of legos dumped out on the floor.  Every book from his book shelf pulled out.  His bowl of cereal also on the floor, crushed crumbled flakes all over.  His train set out.  His sheets rumpled. He smiled. "It's a messy room!  The Berenstain Bears and the Messy Room. By Stan and Jan Berenstain."  It's his favorite book of the month. 


And then I remember the real reason I resist cleaning.  




      
                        
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