Monday, January 16, 2012

A Life Worth Living. A Life Worth Saving.

Just when I think I've seen, heard and read it all, I come across something that makes me say "Are you kidding me?"  Except somewhere between "you" and "kidding" is the big F-Bomb. 

On January 10, 2012 Chrissy Rivera walked into the Children's Hospital of Philadelphia.  And she heard something that no mother should have to hear. Chrissy's 3 year old daughter, Amelia Rivera, needs a kidney transplant.  However Amelia's doctor  states: 

"[Amelia]—is—not—eligible –because—of—her—quality– of –life—Because—of—her—mental—delays..."

How can a doctor determine a child's "quality of life" based on their cognitive disability?

There are several tests where The Boy falls in the Intellectual Disability range (formerly  mental retardation) range.  And my sister, falls under the same disability.  Well, chances are if you are reading this, you've read about The Boy before. (In case you haven't, read this first) But my sister - is in her 20s.  She works part time at a furniture store and goes to the gym 5 days a week.  She's a fantastic artist and has quite the sassy personality.  
And I'll be damned if anyone questions their quality of life.

I can't even imagine what this family must be going through.  But I know how this story makes me feel.  I feel angry.  And disgusted.  But mostly disappointed. 

Because this doctor.  This idea of what determines quality of life simply because someone has a cognitive disability.  Is WRONG.

If you are just as angry as I am.  If you believe that Amelia deserves to be treated equally.  If you believe that every child deserves a chance then sign this petition.

And then go to this page and let the Children's Hospital of Philadelphia know what you think of that Doctor's statement.        
I cannot stop thinking about this story and wanted to read their journey from the beginning.  For more on The Rivera's - check out a few of theses posts: 

About Chrissy & Joe Rivera
"Fix You"
How She Does It...

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AutismWonderland - written by Lisa Quinones-Fontanez - is a personal blog chronicling a NYC family's journey with autism, while also sharing local resources for children/families with special needs.