Showing posts with label adolescence. Show all posts
Showing posts with label adolescence. Show all posts

Sunday, July 14, 2013

Racial Profiling and Autism: How Do We Keep Our Kids Safe From the George Zimmerman's of the World?

Last night as I listened to the Jury declare George Zimmerman not guilty of 2nd degree murder and manslaughter of young Trayvon Martin - I was heartbroken. As a parent, my heart ached for Tracy Martin and Sybrina Fulton. No parent should ever have to lose their child to such senseless violence.

I sat on my sofa with tears streaming down my face - shocked that a young black man's life was of such little value in the state of Florida. Disgusted by the Stand Your Ground law and how one could hide behind it.

We live in a country where citizens in most states have the right to bare arms, to stand their ground in the name of self-defense. We live in a country where Americans have easier access to guns than mental health.

And we live in New York City where Stop and Frisk is practiced.  

In May of 2012, I wrote why I fear for young men of color with autism living in urban communities. Zimmerman's not guilty verdict does absolutely nothing to quell my fear, it simply exacerbates it.

When The Boy was in kindergarten, his teachers made him walk down the halls with both hands in his pockets to keep him from flapping his hands. For years I've gone back and forth on whether or not The Boy should be free to flap. I've gotten to the point where I don't care if he flaps. I never asked him to have 'quiet hands.' Now I worry that his hand flapping will be the thing that makes him look suspicious. If he's walking down the street with his hands balled in his pockets or fidgeting with something - will it look like he's armed? Will his jerky awkward movements or high-pitched scripted speech deem him dangerous?

I don't know how the laws will change or how autism awareness will increase. I don't know what The Boy will look like or be like in ten years. I don't know if he will be able to walk down the street alone. I want him to be independent. But if he is, I will fear for his safety. I fear how he will be perceived.  I fear for any young man with autism...especially those living in a state like Florida.

Children with autism have such a hard time picking up on social cues. They have difficulty understanding body language. How do I teach a kid like mine to be street smart? To be cautious and careful. Who will look after him, when I am gone?  

A few weeks ago, I was talking to someone about The Boy and I mentioned he had autism. Immediately that person brought up Sandy Hook. "Didn't the killer have autism?" she asked. I couldn't even believe that the Sandy Hook tragedy was the connection this person made to autism. I was telling her about my seven-year old son and she associated him with a mass murderer. It was unsettling. It worries me. 

This is why I write. This is why more men and women of color raising children with autism need to come out. This is why autism awareness is critical. People need to understand what autism looks like - not only in children but in young adults. Police and first responders need to be trained to understand and recognize an individual with special needs.

Trayon Martin did not have autism. He was just a boy, walking down the street and targeted as a threat.

But there are many young men of color with autism, who walk down the streets in their neighborhoods. Will they be seen as a threat too? Will someone feel justified to gun them down in the street in the name of standing their ground? 

Eventually our young sons will grow into men. How can we keep them safe ?               



Thursday, May 10, 2012

Living with Stigma #SpeakUpForKids

Earlier this week I attended a press conference at the Child Mind Institute to kick off National Children's Mental Health Awareness Week and the Child Mind Institute's Speak Up For Kids campaign.  Some of the statistics were really difficult for me.  Not only because The Boy has autism/ADHD but because some of the statistics applied to me.

I have lived with depression and anxiety for more than half of my life.  And I remember exactly when it started.  I was in the 6th grade. 

My mother thought it was a phase.  She thought I would grow out of it.  She told me I needed to be strong.   

I remember the first time she took me to see a therapist.  She sat next to me for the first part of the session and I just couldn't get the words out.  For the second half of the session, it was me and the therapist.  But I still couldn't speak, knowing my mother was right outside.  Probably with her ear pressed against the door.  When we left, my mother said if I wasn't going to talk - she wasn't bringing me back. 

My mother said that seeing a therapist would probably go on my permanent record, teachers would label me as crazy and that I wouldn't be able to get a job.  She said, if I talked people would blame her for being a bad mother.  

I've talked about the El Que Diran before.  My mother wasn't a bad mother.  I knew she was scared for me.  But she was more scared of what people would say/think about me.  
Old school Puerto Ricans (or Latinos in general) don't talk about depression or having problems.  My mother was raised to keep things private.  What went on at home stayed at home - it was nobody's business.  And you certainly didn't pay a stranger to listen to you talk about your feelings.

My mother believed in prayer and tough love.  And I am grateful for both.  (What's that saying? "I blame my mother for nothing, but forgive her for everything.")  I don't know if it was her prayers or tough love but the fear of my mother's holy wrath kept me from straying too far.

But there were dark days - especially after high school and my early 20s.  I won't go into the details...but my life was out of control and I was lost.  And when I hit bottom; I knew it.  

I had to speak up for myself.  I found a therapist who I felt comfortable talking to. 
My closest friends knew I was seeing a therapist.  Though one of them believed that I was wasting my money and that I should just "get over it."  We are no longer friends.  And I remember telling a guy I was dating, I was seeing a therapist and the look on his face completely changed.  Obviously we didn't date for very long.  As for my mother - she still couldn't understand.  They made me feel ashamed - asking for help. 

They thought I was crazy.  They couldn't understand why I couldn't snap out it.  They thought it made me weak.

So I understand the stigma of dealing with mental health.       

Walking into that therapist's office was the best decision I made.  It took strength to recognize what I needed.  And that's the moment, I started to heal.

There's no quick fix solution for depression.  I believe it's a process.  It's something I am incredibly conscious of.  My therapist taught me how to be more self aware.  There are moments when I slip but I pick myself up and I keep going.  
 
Yes.  Some days are harder than others.  And I no longer see a therapist (I just don't have the time.)  But I have family and friends to talk to.  I have a husband who gets it.  And I have a son who needs me.  And my writing has helped me so much.  It's my own private practice. 
 
But I also know where to go when my friends, husband, son and writing are not enough to keep me going.          

There is no shame in needing someone to talk to.  There is no shame in depression.  There is only shame when you choose to do nothing about it.

On Friday, May 11, at 12PM ET the Child Mind Institute will be hosting a live Speak Up for Kids talk on Facebook in honor of Children's Mental Health Awareness Week.

For more events please visit the Events page on Child Mind Institute - http://www.childmind.org/en/events/ 

And for more information on mental health:
Disclaimer: I am not a therapist nor am I providing any medical/pyschiatric advice - I am just sharing my own personal experience, thoughts and opinions.

Tuesday, May 8, 2012

Mental Health Matters to Latinos #SpeakUpForKids

In case you missed yesterday's blog post - this week is National Children's Mental Health Awareness Week and the Child Mind Institute is honoring it's 2nd annual Speak Up For Kids campaign.

And after yesterday's conference and reading through all the materials - I am dedicating this week to help raise awareness and to Speak Up For Kids.

I just want to share some startling mental health facts:
  • More than 15 million American children & adolescents have diagnosable psychiatric disorders - more than the number affected by leukemia, diabetes, and AIDS combined.
    • Approximately 50% of these kids will never get help. 
  • Anxiety Disorders appear to affect girls more than boys.
  • Untreated depression is one of the leading causes of teen suicide.
    • Some 80% of cases can be readily and successfully treated if kids get help.
  • ADHD is the most common psychiatric condition affecting children
    • ADHD is diagnosed more frequently in boys than girls
    • Children with ADHD drop out of high school 10 times more than other children.
    • Untreated, kids with ADHD are more likely to drop out of school, develop a substance abuse problem, or get in trouble with the law.
  • It's estimated that learning disorders may impact anywhere from 5 to 20% of all children - as many as 1 in 5 in every classroom.
    • Only 64% of students with diagnosed learning disorders graduate from high school.  Their drop out rate is nearly 3 times that of students in the general population
    • Working-age adults with learning disorders face higher unemployment rates. 
At yesterday's press conference, we discussed the stigma of mental health.  I believe within the Latino community the stigma and shame of mental health is even greater.

In reading the mental health facts - I wondered how many Latino children went without help they needed.  And I found some startling statistics of my own:   
Suicide attempt rates among Latina high school students in New York have nearly doubled since 2007, reports El Diario/La Prensa. A recent study commissioned by the Centers for Disease Control (CDC) of 9,469 New York high school students found that nearly 15 percent, or one in six, Latina students attempted suicide one or more times in 2009. Significantly higher than African-American women (10.2%) and young Caucasian women (6.2%) (source)
High school drop out rates tend to be higher in cities with high socioeconomic disparities and racial segregation. "Epicenters of the dropout crisis are made up of a combination of traditional big-city districts and large countywide school systems. Many of the latter are home to major urban centers," Education Week reported.  "The New York City public school system, the nation's largest district, serves 1.1 million students and predictably emerges as the leading source of non graduates, with nearly 44,000 students slipping away each year." (source)
I am not saying that the Latina suicide rate or that the NYC drop out rates are all linked to mental health but I definitely believe it's a factor.  Poverty, lack of education/awareness, and social stigma all play into the fact that many individuals go without the help they need to live a productive and happy life. 

I wonder how many of these kids went undiagnosed and untreated. 

I wonder how many parents believed their daughters were just being dramatic or if it was just a phase.

I wonder how many parents believed their child would just "grow out of it."

I wonder how many non graduates were called lazy or stupid.

And I wonder how many parents just didn't know what to look for in their children.  Or if they recognized something was wrong - maybe they just didn't know where to go.  Maybe they thought they couldn't afford help.

One of the great things about the Child Mind Institute is that they really want to help children and families - and they don't want money to get in the way.  For families and children with financial need they offer a sliding scale fee and financial aid. 

I think it's important for us to realize that it's okay to get help.  There is no shame in needing mental health treatment.  The only shame is allowing it to go untreated.

Tonight (Tuesday, May 8) at 7PM ET, the Child Mind Institute (@ChildMindDotOrg) will be hosting a tweet chat in honor of Children's Mental Health Awareness Week on Parenting in the Digital Age.

I'll be participating on tonight's Tweet chat - with bullying moving from the playground to cyberspace - it's critical that parents know how to protect their children.

And on Friday, May 11, at 12PM ET the Child Mind Institute will be hosting a live Speak Up for Kids talk on Facebook in honor of Children's Mental Health Awareness Week.

For more events please visit the Events page on Child Mind Institute - http://www.childmind.org/en/events/ 

Sunday, January 15, 2012

AW Sunday Review: The Girls Guide to Growing Up

The Girls Guide to Growing Up: 
Choices & Changes in the Tween Years 
by Terri Couwenhoven, M.S.


ISBN: 978-1-60613-026-1
Woodbine House, December 2011
Ages 8 - 14
62 pages
$16.95




"Puberty is a challenging time for all young adults.  Now girls with intellectual disabilities can grow up with confidence, benefiting from this very clear, practical and honest guide."
~ Dr. Brian Skotko (Physician, Down Syndrome Program, Children's Hospital Boston)
*
Last week I shared an article on my FB Page that made me giggle and cringe.  I won't say anymore.  You read it.  But I will say, I am really happy I have a few more years before I The Husband sits The Boy down for The Talk.  


But we can't put it off forever.  And neither can you.  Eventually our children will hit puberty and we will need to prepare them for it.   


And if I had a special needs daughter, The Girls' Guide to Growing Up written by Terri Couwenhoven, M.S., is the book I'd buy to prepare us both.  


Written in clear and simple language (3rd grade reading level) and paired with age-appropriate facts, realistic illustrations and photos, The Girls' Guide to Growing Up, explains in detail the many changes of a girls body.  The illustrations and photos are even presented in such a way that they may be created into a picture schedule.  The Girls' Guide to Growing Up also discusses feelings and discretion while emphasizing personal safety and privacy.  And it concludes with a Q&A to prompt conversation.


Terri Couwenhoven, M.S., is certified in Special Education by the AASECT and specializes in working with individuals with Intellectual Disabilities, their families and professional support. Couwenhoven is also a mom who gets it, her eldest daughter has down syndrome.  Terry Couwenhoven, M.S. writes with professional expertise and maternal sensitivity.  


Sound like something that would be useful for you?


Interested in winning a free copy?    


Leave a comment for a mandatory entry. 


For additional entries

1. Follow this blog; and/or
2. Follow me on twitter - @LaliQuin; and tweet me using #AutismWonderland hashtag and/ or
3. “Like” the AutismWonderland Facebook page.

With each additional entry you MUST post a comment. Comments will be numbered in the order they are listed and a random number generator (random.org) will be used to select the winner.  Giveaway is open to U.S. residents only.   

If you are already follow me or "Like" the page, no problem. Just post a comment and you have an additional entry.

This giveaway will end Saturday, January 21, 2012 at 11:59pm EST. Winner will be announced on Facebook & Twitter on  Sunday (by noon EST) January 22, 2012.  The winner will have 24 hours to reply. 

Feel free to contact me at autismwonderland@gmail.com with any questions.


Note: Woodbine House provided me with a complimentary copy of  The Girls' Guide to Growing Up  for review purposes only.  (I am offering The Girls' Guide to Growing Up as a giveaway) The opinions expressed are my own and have not been influenced in any way. 

Tuesday, June 14, 2011

Letting Go

The other day I discovered a new blog: The A-Word.  (Good stuff!  Heather St. Clair is one to follow.)  Anyway...the first post I read was "A Common Theme".  It was basically a post of pictures of Heather, her husband and two sons.  In every picture Heather has one arm wrapped around her son, Brian.  She writes:
I'm afraid Brian will see something he likes and bolt for it.

I'm afraid I won't see him leave and then when I do and start to yell his name I'll be overwhelmed realizing Brian doesn't respond to his name.

I'm afraid he'll realize he's lost but not be able to tell anyone his name, age, or where he lives.

I'm afraid he'll go to any adult that offers him a smile and a hand to hold on to.
Sound familiar?  I have these same fears.  I'm sure many of us do.


Holding on for dear life at The Magic Kingdom
Her post really struck me because we have so many pictures where I'm holding on to (more like clutching) The Boy for dear life.  Pictures where my hand is clamped tightly around his wrist, as his hand can so easily slip out of mine.  I hardly ever let go of The Boy when out in public.  When we take the busy NYC subways, I hold on to him with both hands while walking on the platform.  I often wonder: When is it safe to let go? Will I always have to hold his hand? 


Last week while we were walking into The Magic Kingdom, I saw a grandmother walking with her grandson.  The grandmother was small, frail, her back slightly bent from age.  She moved slowly, taking small cautious steps.  Her grandson was taller than her, probably about fifteen.  His steps were just as cautious and slow, he wore a silver medical bracelet around his wrist, he looked all around, but focused on nothing in particular - he was clearly special needs.  And the grandmother was holding her grandson's hand.  I don't think there was any chance he would run away, and if he did - the grandmother certainly wasn't chasing after him.  She wasn't squeezing his hand in fear, but holding it loosely, loving, the way I hold The Boy's hand when we're walking in the neighborhood.  As if it were the most natural thing in the world for this young man to be holding his grandmother's hand for support, without any shame or teenage embarrassment.  The sight of them - the sweet gentility of such a gesture between grandmother and grandson, was so poignant, so tender that I felt invasive and forced myself to look away.      


Had this been a "typical" teenage boy, there is no way he would be holding his grandmother's hand.  Especially in a place like Walt Disney World.  I remember my brother as a teenager, he wouldn't even kiss my mother hello in public, let alone hold her hand.


And I realized in a strange way, we are lucky.  Yes, we fear the possibility of letting go.  But there is something beautiful and almost reassuring in knowing, that we get to hold on for a little bit longer.    

Monday, February 21, 2011

Billy the Kid (2007 documentary)

Photo of Billy by Shane Sigler - Eight Films/Isotope Films
Directed by Jennifer Venditti, Billy the Kid, is a coming age of story.  Venditti documents fifteen year old Billy's lonely life in small town Maine. It is poignant and painful - there are moments that we all can relate to.  Billy describes himself: "I'm not black, I'm not white, not foreign, just different in the mind. Different brains, that's all."


The relationship between Billy and his mother, Penny, is especially beautiful to watch.  They have an honest and open relationship. Penny is both Billy's only friend and parent and you can sense the struggle within her to be both. I won't say anymore - this is an absolutle must watch.