Showing posts with label Autism Awareness Everyday. Show all posts
Showing posts with label Autism Awareness Everyday. Show all posts

Saturday, April 6, 2013

Autism Awareness TOMS by Pear Mama for AutismWonderland

I was going to post this tomorrow but I honestly can't wait! When I picked them up from the post office this morning, I walked out, ripped open the box and changed my shoes in the street. (Oh yes, I did.)

Who painted these beautiful TOMS? 
PEAR MAMA of http://pearmama.blogspot.com 

Between us, I have a bit of a girl crush on this super artsy, super craftsy, super fabulous Latina Cali blogger. I love love love her blog, her voice, her DIY designs that I know I'll never make - because I am not craftsy. At all. 

And when I saw she makes custom-painted TOMS, I knew I needed a pair for Autism Awareness Month. So if you're interested in a pair - Denise aka Pear Mama is the go-to gal! 
For more info on her custom-painted shoes click HERE.     






Disclaimer: I happily paid the going rate for these shoes. All gushing is genuine, all opinions are my own.   

Thursday, February 28, 2013

Autistic Kids Are Awesome...Just Ask The People Who Love & Understand Them

Earlier this week, I read a post promoting an Autism Positivity flash blog carnival to raise awareness regarding autistic adultsInitiated by autistic blogger, Alyssa of “Yes, That Too” after the pro-autistic Facebook page Âû  (Autistic Union) shared disturbing Google search auto options forAutistics are and Autistics should. The carnival welcomes bloggers to share their stories of Autistics are and Autistic should ”[to change] search strings and the search results by way of putting good things out there.”
The post led me to search Autistic Kids Are and Autistic Kids Should and the results were equally disturbing.
Read the rest of this post on Babble Kid --> Autistic Kids Are Amazing. Autistic Kids Should Be Understood. I asked some autism moms to share some amazing things about their kids.


Wednesday, August 1, 2012

How to be Friends With an Autism Mom

Today is National Girlfriend Day - a day for celebrating friends, sisters and friends who have become our sisters.

I've realized the older we get, the harder it is to maintain a friendship.  We grow up.  We grow apart.  And sometimes we break up.  


Before I was a mom, there were after work dinners and drinks with girl friends.  There were afternoons of shopping and getting our hair done.  Friday and Saturday nights, dancing all night.  On Sundays, there was brunch.    


Now that I'm a mother, those days and nights are few and far between.  


And being a special needs mom, friendships become even harder to maintain.  


After The Boy was diagnosed, I felt isolated. There was no one in my circle of friends who could relate to what I was going through.  I am fortunate that most of my friends have been understanding. 
 

I've heard moms say that their friendships have changed after a diagnosis. One thing I've learned while on this journey is - we cannot do this alone.  We need a support system.  We need our friends. 
 

So how do you stay friends with an autism mom?         

1. Be AwareAutism Awareness is a two way street.  Become familiar with the diagnosis  (at least the basics) and common terminology.  Your friend will need you more than ever  and if you have an understanding of the disability - that will make her feel less alone.  She will realize you're in it for the long haul too.  I love it when my friends read or see something about autism and they share it with me.  It tells me that they want to learn. 

And if you have kids, take the time to explain autism to them.  Chances are your friends kid may not have any friends or siblings to play with.  It would be be great if you could schedule a play date.  Especially if your child is a year or two older - the older child can act as a role model for the younger one.   

2. Understand HER. Those first few months after a diagnosis, she may be distant or distracted.   There may be times when she's just not available.  And she may not pick up the phone when you call.  It's not that she doesn't want to be bothered with you - she may just be going through a really tough time.  She may be overwhelmed.  And she may not want to talk about it. 

Understand that she may be flaky and that it's hard for her to make plans.  Childcare will always be an issue.  Understand that if she cancels plans at the last minute, it's not that she doesn't want to spend time with you, it's just a bad time for her or her child.  Do not stop extending invitations - one day she will say yes and you will both have a blast.  However, on  the day you really need your friend - she will find a way to be there for you.  

3. Listen to Her.  When you finally get your friend on the phone or out of the house.  She may need to vent.  She may need to cry.  Let her.  You don't have to really say anything.  It's okay if you don't offer advice (especially if you don't have a kid with an autism diagnosis).  Just let her talk and get it all out.  But, don't let autism rule the conversation.  Try to talk about things that will make her laugh.   She'll want to know about you too, she may be too preoccupied to ask.     

4.  Understand Her Kid.  Understand that her kid may not be able to sit in your house for long and they may have to cut their visit short.  Understand that if your friend is visiting and she's with her kid, she may need to keep getting up to see what her kid is doing.  

Make an effort to understand her kid's speech or gestures.  Make the effort to get to know her kid.   Talk to her kid.  Ask questions.  Take a genuine interest. 

5.  Reach Out/Check In.  If you haven't heard from her - give a call, send a text or email.  Chances are, you've been in her thoughts but she hasn't had the time to call.  

6. NEVER, under any circumstances utter the words: All kids do that.

Maybe this sound like too much to ask of some friends. But did you know Autism Moms have stress similar to combat soldiers.  It's easy to be friends during the good times, it's the friends that hang around through the tough times - those are the real friends. 

And to all my friends - THANK YOU!  Thank you for keeping the invites coming.  Thank you for calling, emailing, texting.  Thank you for your words of support.  And thank you for being there for me and for The Boy.  Thank you for being a friend!     

 

  

Wednesday, May 23, 2012

Making My Voice Heard at The White House #LATISM recap

Four years ago, when The Boy was diagnosed with autism - if someone would have told me that it would have led me to The White House, I would have told them to shut the __ __!  (I think you can fill in the blanks.)

And when I started this blog - I never imagined any one would read it other than my professor and maybe, my classmates.  But some how, over the last year and a half - people are reading.

So when I was invited to The White House as one of the Top Blogueras - for a White House Policy Briefing/Panel Discussion on Creating an America that is Built to Last.  I was honored.  And I owned it.

Walking up the steps to the Dwight D. Eisenhower Executive Office Building

I am not a public speaker.  I am uncomfortable speaking in front of an audience.  Only when I am truly comfortable with someone, am I at ease speaking.  I always tell people - I am so much better on paper.  On paper, I can get it right.    

When the distinguished panel opened up the discussion for Q & A, I wondered if I should say anything.  I had nothing prepared.  No brilliant question or poignant statement to make.  But I forced myself to raise my hand  (after all there was a chance,  I would not be picked and I could tell myself that I tried) knowing this was a once in a lifetime opportunity.  

But I was picked.  And I had to speak.  

That's ME!  Standing at the podium.
Photo courtesy of AnaRc
“@Autismwonderland advocates for kids with autism in the Bronx #latismatthewh”
I told them my name, my blog name and where I was from.  I very briefly told them about The Boy and our experience with special needs services in The Bronx. I told them how much The Bronx was lacking when it came to special education and appropriate services.  I didn't say anything earth moving or mind blowing - I just voiced my concerns for my child.  

And while I expressed that the Let's Move campaign was a great idea - I told them that a program like that wouldn't be appropriate for a child like mine.  All children can benefit from physical activity - especially children with autism.

My ultimate question:  What does the administration plan on doing for special needs children?


For a recap on the discussion go visit Mommy Maestra here - http://www.mommymaestra.com/2012/05/latina-bloggers-policy-briefing.html   

But there was so much I didn't say.

I could have told them all the things I've been through As a Parent

I could have talked about how I Cannot Lose Him.

I could have told them All the things I want for The Boy.

There were so many things I could have said that I didn't say.  


Should have.  Could have.  It doesn't matter.  I said something.  I made my voice heard.  And I got my point across.
  
I've been speaking almost all of my life.  I've been writing for more than half.  

My professor inspired me to start this blog.  

LATISM gave me the opportunity to go to the White House.

The Husband and my family and friends gave me the support I needed to go.  

As for The Boy?  He gave me my voice.  


And I will continue to use my voice to speak up for him, until the time comes when he will speak up for himself.




Wednesday, May 2, 2012

Honor Our Leaders of Tomorrow Who Are Supporting Autism

Created in 1995, The Prudential Spirit of Community Awards represents the United States’ largest youth recognition program based solely on volunteer service. Each year, the program’s judges select 102 State Honorees (two from each state and the District of Columbia) to receive $1,000, an engraved silver medallion, and an all-expense-paid trip to Washington, D.C. where the students will tour the capital’s landmarks, attend a gala awards ceremony, and visit congressional representatives on Capitol Hill.

  
The awards program’s State Honorees for 2012 include many remarkable students whose volunteer service was devoted to Autism. Those students include:

Rebecca Ackerman, 16, of Westborough, Mass., a junior at Westborough High School, leads a fundraising team that has generated more than $80,000 for autism research over the past six years, and works in a variety of other capacities to raise awareness of autism. “My twin brother has never spoken to me, or given me a hug,” said Rebecca. “Even when he stands right beside me, he’s in a different world. David has autism.” When she was 11, Rebecca realized that, even though one in every 110 children has this disorder, most people were not familiar with autism and not much money was being spent on research. “I was determined to change that reality,” she said.  Rebecca organized a team of friends and family members to participate in an annual fund-raising walk for Autism Speaks, a national organization, and to work on autism funding and awareness projects throughout the year. As captain of the “Doing It For Dave” team, she writes letters asking for donations, conducts bake sales and yard sales, operates lemonade stands and coordinates car washes. Rebecca, who also serves on the Boston Autism Speaks Committee, helps coordinate the organization’s annual city-wide walk, gives inspirational speeches, leads webinars and mentors new walk teams. In addition, she started a charitable organization, “Cake Cause,” that provides baked goods in exchange for donations. “I wish that my brother had his own voice,” said Rebecca. “Since he cannot talk, I will do my best to honor him using mine.”

Taytum Jones, 13, of Minot, N.D., an eighth-grader at Erik Ramstad Middle School, has been volunteering with students with disabilities since she was in third grade, both in school and beyond. After Taytum discovered that there was a special classroom for students with autism in her elementary school, “I kept thinking how cool it would be if I could go down into their room and interact with them, but I always said to myself, ‘No, I’m only in third grade!’” she said. Finally, she asked her teacher, and was given permission to miss an hour of class every other day to work in the autistic room. “I thought that was the greatest thing,” she said.  Soon Taytum was spending time with the students before and after school, and during recesses and lunch periods. She helped them with sensory activities, worked on physical coordination skills including stair-climbing and exercise ball balancing and assisted with homework. Taytum also volunteered with an organization called “Dream Catchers” that teaches children with disabilities to play baseball. She continues to work with disabled students at her middle school by playing games and assisting with learning activities. “I think I have made a great impact on children,” said Taytum, who wants to be a special education teacher when she grows up. “I can tell just by the smiles on their faces that they enjoy seeing me. Putting a smile on someone else’s face can bring me up even on the worst day.”
  
While in D.C., 10 of the State Honorees will be named National Honorees on May 7th. These honorees will receive additional $5,000 awards, gold medallions, crystal trophies and $5,000 grants from The Prudential Foundation for nonprofit charitable organizations of their choice. This wonderful trip is designed not only to thank the students for all their hard work, but also to recognize their efforts and encourage others to follow in their footsteps.

On Monday, May 7th  you can watch the awards ceremony where the national honorees will be chosen HERE.

For more information on the Prudential Spirit of Community Awards visit their: