Showing posts with label BlogHer12. Show all posts
Showing posts with label BlogHer12. Show all posts

Saturday, September 29, 2012

Celebrate National Coffee Day with NesCafe & Coffee Mate

It's Saturday morning and of course The Boy is up at 6 am. There is no such thing as 'sleeping in' at Casa de Fontanez. And so when he gets up, I get up. Because if I don't...it usually results in spilled milk, melted ice cream or crushed cheerios.

And the first thing I do when I get up is make a cup of coffee.


I'm a mom who takes my coffee seriously. Because if my coffee isn't made right, my day doesn't feel right. And my coffee needs creamer. I love Coffee Mate's Natural Bliss creamer. It's rich and creamy and I can enjoy my coffee without a lot of guilt.

And mid week, if you're at work and in need of an afternoon pick me up - the NesCafe Memento is the perfect choice. The slim packs fit in a purse or a pocket, making it convenient for the office or school. All you need is a cup and hot water. NesCafe Momento will warm you up on those cool autumn afternoons.

What makes coffee even better? Having coffee with friends so I'm excited that I get to share. I'm giving away a 5 coupons for a FREE bottle of Coffee Mate Natural Bliss cream (16 oz bottle, up to $2.79 coupon void in Colorado, Missouri, Louisiana, Tennesse)  and a box of NesCafe Memento. 

So let's celebrate National Coffee Day and have a cup together.  

How to enter? So easy...Just leave a comment.  


This giveaway will end Saturday October 6th at 11:59pm EST. Winner will be announced on Facebook & Twitter by Monday, October 8th.  Be sure to follow me on twitter @LaliQuin  and/or “Like” the AutismWonderland Facebook pageWinner will have 24 hours to reply.

Disclaimer: I was provided with a complimentary coupons for Coffee Mate Natural Bliss coffee creamer and Nescafe Mememto . All opinions are my own. 


Wednesday, September 26, 2012

Moms Defying Gravity

If you’ve never met an autism parent before, one thing you need to know about them is this: when they see a need, they work to fill the void.

Two moms filling the void in their neighborhood are Alysia Butler and Tina Perriello. Recently, they created SenseAbility Gym - a non profit parent led sensory gym for special needs kids. 

I've been following Alysia Butler's blog - Try Defying Gravity - every since I started blogging two years. And I had the pleasure of meeting her while at BlogHer12. 

Anyway...I had the opportunity to pick her brain regarding her latest venture.

*** 

AW: You wrote in that starting SenseAbility was something you had to do? Why?

AB: There were two reasons why we felt that we really needed to do this. First was selfish. I have three boys, my youngest two are both on the autism spectrum. It's my middle guy who needs the sensory integration supports. In school, he has a "sensory diet" built into his day - meaning he takes breaks from the classroom when it becomes too loud or overstimulating for him, he'll jump on a trampoline when he's having a hard time sitting, he has a weighted lap pad that he actually sits *on* to help him be comfortable at circle time, and around his chair at his desk he has Therabands to exercise his legs while he does his work. All of these activities help him in the classroom.

At home, we don't have the space or the money to have all the equipment that he uses at school to help him calm his body. When we attended some open sensory gym times at local OT clinics, I could see how much it helped him feel more comfortable in his own skin. And how much happier he was. I wanted to have that smile last forever. By opening our own gym, I could do that.


Stemming from that, at those open sensory gyms we saw how happy all the other kids there were as well. We watched the parents interact with their children in such a warm and accepting way. No one there cared if another child was melting down, or spinning, or making eye contact. We were all there together. There were no stares. Only support. Again, we knew we needed something like that in our area. Even to get to an OT clinic is a far drive. This was something our community was missing and we knew we had to fill that void.



AW: What do you hope SenseAbility will do for your community?


AB: We really believe that SenseAbility Gym can become an area resource and meeting place for families with special needs children. Our goal is to create a community where its members feel welcomed and supported, where parents and children can go to socialize with other families who share similar challenges. The environment will be one that recognizes that all special needs children are different and that all learning styles, personalities, and abilities are welcome.

Our area is already incredibly welcoming and inclusive. We have very strong autism resource centers and foundations that support families like mine. This will be another piece of that support system.


AW: Starting a non-profit is no easy task, especially when resources are limited. Any tips on how to make the process easier?


AB: Starting a non-profit is hard, very hard. There were definitely moments along the way when we questioned why we were doing it this way. But we knew we couldn't do this as a for-profit venture because of the very nature of our beliefs and mission. Our goal is to reach as many families as we can who can't afford the type of equipment we will have in the gym.

Our best advice is to find people to help you. My late father used to tell me all the time to "use your resources". He would say that it's called networking, not using. He would remind me that I would help someone else if they asked, so why shouldn't I ask for their help?

 

A lot of times, we don't want to ask someone to help us because we don't want them to feel like we're using them. But people will say no if they don't want to help.
 

No one said no to us. We relied on family, friends and the kindness of strangers to help us. We had people review our materials to make sure they were in order. Neighbors took their personal time out of their evenings to walk us through the steps. We connected with friends who connected with friends. When you believe in your project, people will want to come help you and support you. 

Most importantly, though, is to do your homework. Understand your state's rules and laws around what forms you need to file and when. Make sure you aren't breaking any laws that you didn't know existed. Have a lawyer review your materials a few times.


And breathe when you take that leap of faith that it will all work out. Because in time, it will.


***

Alysia's blog is called Try Defying Gravity after the song in the Broadway musical Wicked. With moms like Alysia and Tina there is no try - they are defying gravity.

For more about Alysia and Tina's amazing fundraiser for SenseAbility, check out my Parents.com - click HERE

To read more about their plans, click HERE.

To make their dream a reality, click HERE.


Saturday, September 15, 2012

Some Days I Don't Feel So Lucky

While attending the BlogHer Healthminder session, I had the pleasure of meeting Kate Canterbury, who blogs at The Guavalicious Life . We chatted only briefly but she was funny and down to earth and she liked my dress (so obviously she has good taste).

I have mixed feelings about BlogHer, but attending the Health Minder session was one of my BlogHer highlights. I loved every panel I attended that day. (There were so many takeaways that I haven't had the chance to write about just yet it, give me time) But Kate Canterbury said something that has stayed with me.

During the "Blogging About Your Special Needs Child" panel session (you can read the full transcript here), Kate said: "I don't feel lucky to have special needs kids. It's extremely hard on our marriage. I think it's valid to share. But I don't want my kids to think they didn't love them. I don't want readers to think I don't like my kids." 

And as soon as Kate said it - the room got really quiet. There were tears in my eyes as I nodded and when I looked up, I noticed there were many women with tears in their eyes nodding their heads.

Kate had the courage to say - out loud - something so many of us keep tucked away in the back of our minds. Because we are scared. 

Scared of what people will think about us. Scared of what people will think about our kids. And scared because people are quick to point, fast to talk and yet so slow to understand.

I love The Boy. My family and friends who know me beyond the blog, know I love The Boy. And I hope, if you've been reading me for a while you know it too.

And I can assure you, I do not want to cure The Boy of anything. 

But that doesn't mean that our life is easy.  That raising a child with autism isn't the hardest thing I've ever done. Or that I don't get sad or mad or frustrated.  

I may be a mom, but I am allowed to have feelings - all of them.

And some days, I don't feel so lucky that my kid has special needs.

I don't feel lucky when I'm up all night worrying about IEP meetings.

I don't feel lucky when my heart aches seeing 6 year old boys whizzing by on their bikes, calling out taunts to their pals.

I don't feel lucky that I had sue the Department of Education just to get an appropriate education for The Boy.  

I don't feel lucky spending thousands of dollars on therapies instead of softball, karate or soccer.

I don't feel lucky that the closest appropriate school is twenty two miles away from home. 

I don't feel lucky when I have to turn down invitations because I know it's something The Boy can't handle.

I don't feel lucky asking The Boy questions and he isn't able to answer.

I don't feel lucky that date nights with The Husband are few and far between because there aren't many people we trust to stay with The Boy.

And I don't feel lucky that the thought of out living The Boy by a day, doesn't seem so bad.

Just as autism is a spectrum, autism parents experience a spectrum of emotions.

And maybe none of my feelings make sense. But you know what? The fact that I have to fight for insurance coverage, school placement and therapies - doesn't make much sense to me, but I go with it.  

But even on those days when I'm not feeling so lucky - I am lucky it's a fleeting feeling. Because most days, I feel like the luckiest mom in the world to have a boy as sweet as mine.

Monday, August 27, 2012

How I Feel About Getting Old


In 23 more days, I will be 37 years old (um, not like I'm counting or anything).  The Husband likes to tease me and say, I'm on the wrong side of 30. I suppose I am.  I will be another year closer to 40. Slowly approaching mid-life.

I don't care about my age. I've never been one of those woman who wants to be twenty two forever. In many ways, I look forward to the years ahead. From a personal stand point - I have so much to still look forward to. 

But in the last year I've had to think about things like life insurance, living wills and special needs trusts.

I'm not old now. But one day, I will be and I worry about the day when I cannot care for The Boy. 

I worry about that day more and more.   

While at BlogHer I stopped by the Pfizer Get Old exhibit booth. There were a few young men and women wearing t-shirts that said "Get Old" - and that's the kind of thing that grabs my attention. Behind them was a big white wall where everyone was sticking different colored post its. I was asked one question:


 HOW DO YOU FEEL ABOUT GETTING OLD?


The choices were: optimistic, angry, prepared or uneasy.

How Do You Feel About Getting Old?

In case you don't know, my answer was (and still is) uneasy. Check out what other BlogHer12 attendees said about getting old -- HERE.

Based on collected data from the general public 30% of people feel optimistic; 28% feel angry; 11% feel prepared and 30% feel uneasy.  So it's nice to know I'm not alone.

Pfizer wants people to face the inevitable - we will all get old. The www.GetOld.com site not only provides useful information about aging but also invites people to share their thoughts about getting older. 

And to add to the Get Old conversation Pfizer has partnered with: Alzheimer’s Association, Easter Seals, International Longevity Center at Columbia University’s Mailman School of Public Health, Men’s Health Network, National Alliance for Caregiving, National Black Nurses Association, National Coalition for Cancer Survivorship, National Consumers League, National Family Caregivers Association, Patient Advocate Foundation, Society for Women’s Health Research, Visiting Nurse Associations of America, and WomenHeart: The National Coalition for Women with Heart Disease. 
  
Getting older isn't a subject many people want to talk about. It's a subject young people don't think about. Andi t's certainly a subject parents of special needs children constantly worry about. 

But the more we talk about it now, the better off we'll be. The healthier we live now while we're young, the healthier we will be when we are older. 

It's time to make some changes in my life. I want to be in the groups that feel prepared and optimistic.  

Would love to know - How do YOU feel about getting old? 

Disclaimer: This is not a sponsored post. All opinions are my own.

Friday, August 10, 2012

10 Things I Learned at #BlogHer12

I am still recovering from BlogHer.  I'm upset that I didn't take advantage of all the sessions, like the geek bars but I felt like everything was going on at once.  And quite honestly, I just wasn't prepared.  

But in my three days, I managed to learn a few things:
     
10.  So apparently, Bloggers like things that BUZZ.  The Buzz Booth always had a crowd gathered round and the ladies were giggling with girlish delight.      

9.  I learned how to belly dance!  I even got a little blue jingly scarf.  And you know who taught me?  Susan Senator.  Well, she didn't teach me specifically - it was part of the Health Minder Day. 

8. I wish I had more time to spend with the Special Needs Autism Mom Bloggers because they are pretty awesome.  There are too many to name but they know who they are.  


6. I do not feel comfortable accepting swag. Don't get me wrong, I came home with some but I I found the Expo Halls overwhelming and it took much energy to schmooze and pretend to be interested in products that I would most likely not blog about.      

5. There never seems to be enough food but there are always plenty of drinks.

4. There are some pretty incredible women writing blogs.  Hearing their stories, just makes me incredibly proud to be among such amazing woman. 

3. I really like Katie Couric.  Honestly, I never really got the hype about her.  But she was so genuine and funny. And when she said, "I'm going to block his ass," referring to a nasty twitter follower - I totally got the hype. I am so excited about her show. 

2. The average person donates $4.20 to a non profit organization.  And there are so many other ways a person can donate.  Let Soledad, Christy & Malaak tell you how ~ 


And the #1 thing I learned at #BlogHer12?  

I blog for the love of it.  But I'll tell you more about that next week.  

Monday, August 6, 2012

I Do Not Speak Spanish. And Apparently, That Makes Me An Embarrassment To My Culture.

I spent the last three days at the BlogHer conference. And I have mixed feelings about it.  Don't get me wrong, I had some great moments, met some pretty inspirational women, spent time with my BBFs (Blog Buddies Forever) and even shook hands with Soledad O'Brian. 

But last night I walked away feeling hurt and confused.

It happened at the Social Fiesta of all places. I was standing by the dance floor, having a good time, enjoying the music and chatting with a small group of women. I mentioned that I do not speak Spanish. One of the women - a woman who pretty much kept her back to me the whole time - turned to me and said, "You're just an embarrassment to our culture."

I was so completely caught off guard by the audacity of this woman's statement I didn't know what to say. I walked away without a word.  And I felt really small.   

It was like a kick in the gut.  It was rude just for the sake of being rude.  And it put a damper on the rest of my night because her words continued to ring in my ear like a horrible case a tinnitus.

Why would she something like that to someone she had just met, whose name she didn't even bother to ask? I wonder what culture means to her.      

I have struggled with cultural identity for years and I’ve always felt like I’ve never had a place. Dancing between two worlds in cultural limbo. Growing up in a diverse Latino neighborhood and not speaking Spanish, I heard it all: valley girl, gringa, stupida. Accused of not being proud of my heritage and interrogated on why my mother never taught me Spanish; my mother silently accused of parental neglect. 

"¿Por qué?the older generation likes to ask.  As if it is my fault I do not Spanish, as if I could have taught myself at two or three years old.    

But never in my 36.11 years on this earth have I been called an embarrassment to my culture. That's a pretty serious insult. 

Initially my feelings were hurt.  But now, I'm just pissed.  Because how dare she say I'm an embarrassment.  Her statement was not only ignorant but arrogant.  Because that woman knows nothing about me, my life, my writing.  


She doesn't know that my mother tried raising my brother and me bilingual.  But my brother was three years old and still not speaking, so my mother decided to speak only in English.

That woman also doesn't know that I am an honest person. I am a good person. I have worked since I was 13 years old, sometimes 2 jobs at a time.  I have worked my way through college, took classes throughout my pregnancy and graduated with honors.  I am in graduate school because I am eager to learn.  I am an involved parent.  I advocate to ensure The Boy has the services he needs.  She doesn't know that my ultimate goal for this blog is build a dream school in The Bronx - a borough that is in dire need for more special needs schools and services.                

I guess none of that stuff counts?  These are not the characteristics a culture could be proud of.  My poor mother, she must be so ashamed of daughter she raised.   

Is speaking Spanish the only way I can represent cultural pride?


I've watched documentaries and own dozens of books about Puerto Rico. I've studied its history and read its literature. I (I have many Spanish speaking friends who do not know the island history, the way I do.)

I am proud of being Latina.  I am proud of my color, my hair and my hips.  I am proud of my name with its Qs and Zs.  I am proud of the place my parents were born.  And I am proud of the language I long to speak but have never been taught.

Not being able to speak Spanish does not me any less proud of being Puerto Rican.     

In a conference of 5000 women, a super small percentage attended the Special Needs panels on Thursday. Autism is especially stigmatized in our culture.  As a culture, special needs isn't really something we talk about (let alone write publicly about).  And sitting in the Gramercy East room that Thursday, I am pretty sure I was the only Latina in the room. 

For several hours we talked about loss, love, acceptance, awareness and advocacy.  We talked a lot about respect. I learned so much in a short time and I was proud to sit in a room with women I admire. Women who were fighting - not only for their kid - but for all individuals with special needs. I was among women making real differences in their communities. 

The woman who made that statement about me being "an embarrassment" wasn't in the any of the Special Needs sessions with me.  It's too bad.  She could have learned something.   

Thursday, August 2, 2012

Autism Hopes NEW on Parents.com (YAY!)

It's 6 am and I'm getting ready for BlogHer 12. In case you missed it on Facebook, Twitter and Pinterest yesterday I announced some pretty BIG blog news.  


Ellen Seidman, blog writer extraordinaire, asked me (ME!) to guest post a weekly series on one of her Parents.com blog To The Max.


Obviously I said YES!


The weekly (Wednesday) series is called, Autism Hopes.  And my first post went live yesterday.  


5 Things You Don't Know About an Autism Parent 
Prior to the diagnosis, I knew very little about children with autism. And I knew even less about the parents who raised them. There wasn’t a single parent I could turn to for advice or support. But in these last four years, I’ve met so many inspiring moms and dads with kids on the spectrum. And I’ve learned just as much from them as I have from Norrin.
So what are the 5 things about an autism parent? Click HERE to find out. Hope you like my first post and would love to hear your thoughts.     

Tuesday, July 31, 2012

I Can't Believe I'm Going to BlogHer! #BlogHer12Newbie

In two days, I will be at the Annual BlogHer Conference  and I'm sort of freaking out.  

Technically BlogHer will be my third conference.  Remember back in April I was invited to speak at Hispanicize and then in May I had the honor of being named one of the Top Blogueras and invited to The White House.  

Don't get me wrong, I was nervous then too.  But Hispanicize, I had to travel to Miami.  It was my first big trip away from The Boy and I was speaking on a panel.  That occupied most of my worry.  And DC was a small group of about 70 women - many I met at Hispanicize.    

But this is BlogHer!  The mother of all blog conferences for women.  Like thousands of women.  Women from all over the world.  Major bloggers, mega brands and powerhouse social media influencers and experts.  

I mean check out the Keynote speakers: Martha Stewart (Oooohhh)  Katie Couric (What?!), Soledad O'Brian (OMG!!!), Malaak Compton-Rock (YAY!) and Christy Turlington Burns (Whoa...)!    

And in the same room as these women, will be me.  Me?  And there's this small part of me that feels like I'm crashing the party.  Kinda like how Baby felt when she walked into the party with Billy and she meets Johnny for the first time.  That will be me, walking into the Hilton feeling shy, slightly insecure, weighed down with a watermelon and wondering what the hell I've gotten myself into.  (Okay, maybe not carrying an actual watermelon...)    

I am nervous but also giddy with bloggy girl excitement!
   
There's Thursday - the Health Minder Day.  I'll get to listen and learn from some pretty amazing ladies like, Ellen of Love That Max, Kristina ChewSusan Senator and Laura Shumaker.          

I get to hang with my Amigas: Ruby and Rachel.  And so many more fabulous blogueras.   

I'll get to meet (for the first time!) some of favorite Special Needs/Autism Mom bloggers.  But I'll let Alysia tell you who since we're both excited about the same people.  

I'll also be in my hometown of NYC.  Which means, no hassle and expense of traveling or packing since the hotel is only a subway ride away.  Also being in NYC adds to my comfort level of what to wear.  I'm a pretty jaded New Yorker and as a former party girl - I never really worry if I'm over dressed or under dressed so long as I feel good in what I'm wearing.        

I'm excited about the parties, meeting new people and networking.  

I'm excited because I am doing something for me.  I am investing in myself.  And that in itself is worthy of celebration.     

Come to think of it, maybe there's nothing to be freaking out about after all.  Maybe three times really is the charm.  

And maybe I'll have the time of my life...so long as no one puts me in a corner.  (Did you think I could post a Dirty Dancing photo without quoting those lines?)