Showing posts with label adults with autism. Show all posts
Showing posts with label adults with autism. Show all posts

Sunday, July 14, 2013

Racial Profiling and Autism: How Do We Keep Our Kids Safe From the George Zimmerman's of the World?

Last night as I listened to the Jury declare George Zimmerman not guilty of 2nd degree murder and manslaughter of young Trayvon Martin - I was heartbroken. As a parent, my heart ached for Tracy Martin and Sybrina Fulton. No parent should ever have to lose their child to such senseless violence.

I sat on my sofa with tears streaming down my face - shocked that a young black man's life was of such little value in the state of Florida. Disgusted by the Stand Your Ground law and how one could hide behind it.

We live in a country where citizens in most states have the right to bare arms, to stand their ground in the name of self-defense. We live in a country where Americans have easier access to guns than mental health.

And we live in New York City where Stop and Frisk is practiced.  

In May of 2012, I wrote why I fear for young men of color with autism living in urban communities. Zimmerman's not guilty verdict does absolutely nothing to quell my fear, it simply exacerbates it.

When The Boy was in kindergarten, his teachers made him walk down the halls with both hands in his pockets to keep him from flapping his hands. For years I've gone back and forth on whether or not The Boy should be free to flap. I've gotten to the point where I don't care if he flaps. I never asked him to have 'quiet hands.' Now I worry that his hand flapping will be the thing that makes him look suspicious. If he's walking down the street with his hands balled in his pockets or fidgeting with something - will it look like he's armed? Will his jerky awkward movements or high-pitched scripted speech deem him dangerous?

I don't know how the laws will change or how autism awareness will increase. I don't know what The Boy will look like or be like in ten years. I don't know if he will be able to walk down the street alone. I want him to be independent. But if he is, I will fear for his safety. I fear how he will be perceived.  I fear for any young man with autism...especially those living in a state like Florida.

Children with autism have such a hard time picking up on social cues. They have difficulty understanding body language. How do I teach a kid like mine to be street smart? To be cautious and careful. Who will look after him, when I am gone?  

A few weeks ago, I was talking to someone about The Boy and I mentioned he had autism. Immediately that person brought up Sandy Hook. "Didn't the killer have autism?" she asked. I couldn't even believe that the Sandy Hook tragedy was the connection this person made to autism. I was telling her about my seven-year old son and she associated him with a mass murderer. It was unsettling. It worries me. 

This is why I write. This is why more men and women of color raising children with autism need to come out. This is why autism awareness is critical. People need to understand what autism looks like - not only in children but in young adults. Police and first responders need to be trained to understand and recognize an individual with special needs.

Trayon Martin did not have autism. He was just a boy, walking down the street and targeted as a threat.

But there are many young men of color with autism, who walk down the streets in their neighborhoods. Will they be seen as a threat too? Will someone feel justified to gun them down in the street in the name of standing their ground? 

Eventually our young sons will grow into men. How can we keep them safe ?               



Sunday, April 21, 2013

The Story of Luke

Last night I should have been working on my thesis. Instead, I decide to procrastinate by watching The Story of Luke.

Luke, 25, is autistic and lives a sheltered life with his grandparents. But his world is suddenly turned upside down when his grandmother dies and he is forced to live with his dysfunctional relatives who have no patience for him or his senile grandfather, who they quickly force into a nursing home. Luke is left with his grandfather’s final semi-coherent words: “Get a job. Find a girl. Live your own life. Be a man!” For the first time in his life, Luke has a mission. He is about to embark on a quest.

I really enjoyed watching The Story of Luke. I laughed and I cried. And while there were parts that made me sad and a little angry - it gave me hope. 

Hope that The Boy could find a place in the world. Hope that someone in this world will want to understand him and give him a chance. There was so much of Luke that reminded me of The Boy (whose middle name happens to be Luke, after the Jedi, not the apostle).

What I loved about Luke is his confidence, he knows who he is and refuses to let others diminish or devalue his abilities. Luke, played by Lou Taylor Pucci, not only has a innocent charm about him, but this sense of determination and will to succeed. 

The cast was amazing! Cary Elwes was fantastic, (I've had a crush on him since The Princess Bride - who hasn't?) as Uncle Paul - he was honest and warm. And Kristin Bauer (True Blood) as Aunt Cindy was perfect. One of my favorite lines of the movie is when she says to Luke, "I don't need to understand you, but it's good to have dreams."

The Story of Luke is an honest portrayal of family relations - family is complex. It's difficult to be the parent/caretaker of someone with a disability. It's hard to watch your parents grow old and care for themselves. It's hard to grow old and have to depend on your children. It's hard on a marriage and/or family when it has to take on the role of caregiver to a relative - The Story of Luke doesn't shy away from any of that. Family isn't always tolerant, accepting or understanding of family members who are elderly or have a disability. The responsibility of them is often thought of as inconvenience.

I loved watching the whole family dynamic transform with Luke in their lives. While it's obvious they know nothing about autism and have had limited contact with him, by the end of the movie, the family has not only accepted Luke as a member of the family - they love him. More importantly, they need him. Luke's relatives become compassionate, and it is the compassion that comes with day to day experience.   

The Story of Luke goes beyond being a movie about autism, it's about understanding, acceptance and compassionate for others. One of the key takeaways from The Story of Luke is that "Everybody is good at something." Everyone - regardless of the their disability - can do something. Everyone has something to contribute. And everyone's contribution is important.

   

Disclaimer: I ordered (paid for) The Story of Luke on demand. I have not been influenced in any way, all opinions are my own.    

Tuesday, November 13, 2012

Understanding Autism Through Poetry (Poems by Scott Lentine)

A while back, a young man by the name of Scott Lentine emailed me two of his poems. As soon as I read them, I was incredibly moved. He asked that I share them on my page. This is Scott's perspective on his autism.

*** 

Just a Normal Day
   
Never knowing what to say
Never knowing what to do
Always looking for clues
Just a normal day

Feeling unsure
Totally perplexed with everyday life
Always on edge never certain
I wish I could lift this curtain

Needing to constantly satisfy my need for information
Always online searching for new revelations
Going from site to site
Obtaining new insights every night

Trying to connect with people my age
Attempting to reveal my unique vision
But ending up alone and unengaged
Feeling like my needs a total revision
Just a normal day

****

Can’t You See

Can’t you see
I just want to have a friend
Can’t you see
I need the same connections in the end

Can’t you see
I want a good job
Can’t you see
I need to have stability and dependence and part of the general mob

Can’t you see
I want to be independent on my own
Can’t you see
I want to be able to have my own home

Can’t you see
I want the same things as everyone else
Can’t you see
I want to be appreciated for myself


Scott Lentine, a 25 year old man with high-functioning autism (PDD-NOS/Asperger's) from Billerica, MA, a Boston suburb. He graduated from Merrimack College magna cum laude with a Bachelor's Degree in Religious Studies with a Biology minor. Scott is currently an office intern at the Arc of Massachusetts in Waltham, where he tries to persuade lawmakers to pass key disability resources legislation to improve the lives of people with developmental disabilities. Scott is interested in data clerical entry duties, hospital settings, autism non-profit organizations, and research type work.